Sunday 2 August 2015

Back From The Brink - How I Survived a Cardiac Arrest at 34



My first memory of 2015 is from 8th January, and it's of my family standing around my bed in a hospital room, trying to explain to me what had happened.  Not a lot was sinking in as I was still heavily sedated, but they were telling me that I'd collapsed after a run on New Year's Day, that I'd been rushed to hospital, and that they had found a complete blockage within one of the arteries in my heart.  That still seems surreal to me now, so imagine how it sounded when waking up after a week sedated in a hospital bed.


I tried to piece together what happened but my short term memory was completely wiped – apparently a common occurrence for people that have been through a trauma, and an example of the body's "self-defence" mechanism.  I didn't even remember starting parkrun, let alone finishing two of them (I did 5km at Peckham Rye then another 5km at Hilly Fields)… and in fact the end of December was also a complete blank as well.  It's probably just as well I have no memory of the day, as the story got more and more frightening as people relayed what had happened to me.  


I finished the second parkrun, was in line to have my time recorded, complained to my friend that I wasn't feeling well, and then collapsed to the ground.  My heart had gone into "ventricular fibrillation" – where for whatever reason it just couldn't pump enough blood round my body… and then nothing.  It stopped beating.  This was a full-on cardiac arrest, that thing you hear about in the news but never imagine happening to you at 34 years of age.


I was incredibly lucky to be quickly surrounded by some amazing people… my fellow parkrunners came to my rescue and went into life-saving mode.  A team of four of them administered CPR for nearly 15 minutes while we waited for an ambulance. They somehow kept my blood (and crucially, oxygen) pumping round my body, which meant that when the ambulance arrived they were able to 'shock' my heart back into a normal rhythm and keep me alive.


I now know that surviving an out-of-hospital cardiac arrest is rare, surviving for over 15 minutes without a regular heartbeat is extremely rare, and making a full recovery without brain damage or ongoing heart problems is almost unheard of.  They put my chances of survival somewhere between 2% and 4% (thankfully this statistic wasn't passed onto my family at the time!).  The realisation of how lucky I was has been made even more significant by the tragic events in Belgium where footballers Gregory Mertens and Tim Nicot both died within a few days of each other after cardiac arrests, and closer to home at Whyteleafe FC when Tonbridge player Junior Dian also died after collapsing during a pre-season friendly.


There’s no doubt that I survived only because of the intervention of my fellow runners, who thankfully had been trained on life-saving techniques.  Learning CPR really is straightforward, yet the majority of people sadly wouldn’t know where to start.  I was really impressed to see my former employer Barclays put 10,000 members of staff through CPR training recently, and I really hope other big organisations follow suit.  



Photo: Finishing the Bath Half Marathon in 2013

The ambulance took me to King's College Hospital, where they performed an angiogram, which is basically a camera that went into the artery through my wrist, all the way into my heart, where they found the blockage.  They cleared it, and re-enforced the artery with a bit of what I call 'scaffolding' but which is actually called a stent.  It lines the artery wall, keeping the vessel open for blood to start pumping again as normal.  So what caused the blockage?  Well that's the bit nobody has ever really been able to explain.  All of the scans showed the rest of my heart to be in "pristine condition" (not my words but those of the consultant) which suggests it wasn't heart disease or anything related to lifestyle.  Most likely it was something genetic that meant that bit of my heart was pre-disposed to problems, or it could have been some event from earlier in my life that damaged the artery, unbeknown to me at the time.


Whatever caused it, the biggest positive was that they fixed the problem, and that all the scans were showing my heart to be functioning normally after the operation.


For the first month after the arrest, I couldn't even imagine running again.  I was in hospital 23 days, and when I was finally discharged my legs were so weak I couldn't walk to the end of my road without feeling like I'd done a marathon.  Apparently for many people, the hardest part of recovery from any sort of heart attack is psychological – that worry about it happening again.  This is where the hospital did something amazing to give me peace of mind – they fitted me with my own personal defibrillator.  I have a small device implanted into my side, with a cable that runs across my heart, and this device monitors my heart activity.  If my heart ever goes into a dangerous rhythm, it will administer a shock that should effectively "reboot" my heart and get it working again.  This means that if it did happen again, I wouldn't have to rely on my team of life-savers or the appearance of an ambulance to get my heart back into a normal rhythm.  As weird as it sounds to have a device sewn into your chest, it provides amazing reassurance to know you have your own little insurance policy should anything go wrong again.


Before New Year’s Day I’m not sure I even knew what a defibrillator really was, but now I know that they really are the difference between life and death for a lot of people that go through similar events to the one I had.  Both the British Heart Foundation and the London Ambulance Service are trying to raise awareness of how vital they are, and the LAS generously donated a defibrillator to Hilly Fields parkrun after my arrest.  They now have one on standby at every run, and although hopefully it will never be needed, it’s great for the runners and organisers to know they have the equipment they need to potentially save another life if the worst was to happen.



 Photo: My medication.  More pills than Pete Doherty!


My implant, together with the excellent cardiac rehabilitation programme run by King's College Hospital, has rebuilt my confidence in running.  I started with a few quick walks on the treadmill, and within a few months I had built up to being able to run properly again.  I'm now at the point where I want to make my return to running out and about, and am planning my return to parkrun on Saturday August 8th.  I may be quite a bit slower than I used to be, but the beauty of parkrun is that it doesn't matter.  It's a free 5km run that happens in parks all over the world, and it's a great way of gently getting back into a regular running habit.  As tempting as it is to go back to Hilly Fields and run with the people who saved my life, I've opted for the familiar (and more importantly, flat!) surrounds of my local park in Dulwich.


The question I’ve had most regularly since this all happened is “has it changed your outlook on life?”  It’s a very difficult question to answer, but it has certainly made me realise what is most important in life.  Learning so much about heart problems has made me in awe at the work that leading charities do, such as C-R-Y (Cardiac Risk in the Young) who offer cardiac screening to people under 35, to try and detect any heart abnormalities.  Amazingly they find an abnormality in 1 in every 300 people they test, and by detecting it at an early stage they can make sure the individuals get the treatment they need to hopefully prevent anything serious from happening.


It’s still the early stages of my recovery so I will be taking it easy and sticking to 5km parkruns for the time being.  However if things go well I would like to do a longer event and raise some money for charity.  In the meantime I’m trying to raise awareness and I urge you all to have a look at some of the information at the links below.


Thanks for reading, and if you feel like lending some moral support, I will be at Dulwich parkrun on Saturday 8th August.  I’ll be the one in the pink and blue Dulwich Hamlet FC shirt so should be easy to spot!


British Heart Foundation: https://www.bhf.org.uk/

Cardiac Risk in the Young (C-R-Y): http://www.c-r-y.org.uk/




Special thanks go to:


My Hilly Fields Team of life savers: Siggy, Liam, Anne and Bhupinder


My 1st Jan running partners: Darren and Gila, who had the unenviable job of breaking the news to my girlfriend Alex and keeping her company in hospital


My ICU nurses (I don’t remember you but I’m told you were awesome): Steph and Mike


The KCH Cardiac Rehab Team: especially the "Thursday Team" of Annie, Phillippa, Tony and Ian


Everyone who visited me in January, sent cards, brought grapes, and generally helped keep me sane while in hospital for nearly a month


And last but definitely not least, my partner Alex, probably the only person who had a worse January than I did.  She was amazing through the whole thing and has been unbelievably supportive.  She even approves of my return to parkrun!


I can be contacted at neil.m.cole@gmail.com - feel free to get in touch that way, or comment below if you have any questions or comments about my experience.

14 comments:

  1. Hello Neil, You don't know me but I was running HF that day too and was one of the anxious people standing around you. In fact, I was ready to jump in with CPR (having recently done a course) but you could not have been in better hands than you were. That ambulance seemed to take an age to arrive and it did not help that the police appeared to think that you were a crime victim.

    I had a heart attack in May 2014, much less serious than yours but of the conventional CVD type. I too was fitted with a stent at KCH and am now back running better than I ever was before. I know you've been back to HF once to volunteer and I look forward to seeing you back one day running as well. Dulwich is a very good place to start and do take it easy. All the best.

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    1. Hi KoR, great to hear from someone else that was there on New Year's Day. That helps explain why apparently five police cars turned up to the scene! Glad to hear you've had equally good care at KCH and back to the running. See you at a Parkrun soon. Neil.

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  2. Neil

    My journey started last September with a beginning very similar to your own. A few differences, the major one being I do not have a little friend inside me!

    I am back running and enjoying it. I found Cardiac Athletes and joined. Think you should take a look. It is a closed group for Heart Patients getting back into sport. It is inspiring and a very good community of runners etc all of whom have had Heart Problems. The URL is https://www.facebook.com/groups/478037275561838/

    I am also arranging a UK Meet up of members in October. Would be great if you could consider it. There is a 5km event.

    Your blog is great. You are the fifth SCA survivor in the running community I have had the pleasure to meet.

    Roland

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    1. Hi Roland, thanks very much for the information. I didn't know about that group so will definitely check it out and will aim to come to any future events. Great to hear you've had an equally positive outcome from such a serious trauma. All the best, Neil.

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  3. Good luck Neil, it is a fantastic blog piece - hopefully you found it helpful, even cathartic writing it. I had a near death experience involving a car failing to stop at a pedestrian crossing and am back running but haven't raced yet - although am close to. I will think about you on Saturday morning and hope you write about it. Paul

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    1. Hi Paul. Yes I've been scribbling down thoughts since Jan and I found it very helpful putting together the blog. Sorry to hear about your experience and hope you are back running soon. Neil

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  4. Catch the bus!!

    What time does the run start?

    I'll put it out to the dead dog tourists. See if we can come along and give you some abuse!!

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    1. Cheers Mick... I think! The run starts at 9am, it's three laps of Dulwich Park so we should be easy enough to spot. Then to Champion Hill later on to celebrate! See you Sat.

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  5. Hi Neil,

    Thank you for taking the time to write this blog.

    In 1985 my Dad had a heart attack at home I was only 22 at the time and can remember what seemed a very long time for the Ambulance to turn up especially as I was the only giving CPR. Even though I did my best sadly I lost my Dad that evening and making it even harder to come to terms with was the fact my Dad was a Fireman who had saved many lives during his career.

    My home run is Bushy Park and like you we had a runner collapse several months ago which was heart related, she was given CPR from fellow runners until the Ambulance arrived.

    Life is precious and I'm sure the experience you have shared with us will help others.

    All the very best with the recovery.

    Paul

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    1. Hi Paul, thanks for sharing your story and I'm so sorry to hear about your Dad. These events are so traumatic for everyone present, even more so when it's one of your close family.

      Thanks for the kind words and maybe see you at a parkrun... if all goes well I intend to do a bit of parkrun tourism and Bushy is definitely on my list! Neil

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  6. So glad you have made such a good recover Neil.

    I was there that day, and I must admit many people went home thinking that you hadn't made it, as the police put tape around the scene with you in the middle of it on a stretcher. I did promise that day that I would relearn CPR, reading this today reminded me of that promise and today I signed up a for a three day first aid course at work, including CPR.

    Wonder what your general take is now on running and health? There's always some people who will say, when they hear about a situation like yours, 'see I told you it was bad for you'. There's others who believe that running is some kind of magic bullet that will protect them from any health/heart problems. Guess no human activity is without risk.

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    1. Hi Neil, brilliant to hear that this blog has prompted you to sign up for a first aid course at work. That's exactly the sort of thing I was hoping to achieve!

      You're absolutely right that a few people have made partly tongue-in-cheek comments about how they "always knew running was bad for you" or words to that effect. Well the hospital left me in no doubt that I had a blockage in my artery for whatever reason, and at some point it was likely to cause me very serious problems. If I hadn't been running that day, I might not have had the arrest... but I would have done at some point soon after and in all likelihood it would have killed me. At least because I was (relatively) fit when it happened, I was in a great position to recover from the trauma and get back on my feet so quickly.

      To people who say running nearly killed me - I say running certainly saved my life!

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  7. So pleased to hear your recovery is going well.

    I wasn't there that day but heard about it the following run - really sobering. It reminded me of a hockey match twenty years ago when a player collapsed and three of us gave CPR for what seemed forever - unfortunately we were not successful despite doing our best.

    Thanks for taking the time to write your story and all the best for the future.

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    1. Thanks for the kind words Ian. I'm certainly more aware of these tragic events now and they do seem to happen with an alarming frequency (or perhaps I just notice them more now). All we can do is continue to raise awareness as much as possible, and that together with advances in medicine should hopefully improve cardiac arrest survival rates over time.

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